Less than two percent of the general population suffers from oral lichen planus, an uncomfortable and chronic condition characterized by lesions that form in the mouth and skin. It’s not unusual for lichen planus sufferers to know no one else with the disease.
That’s one reason for the popularity of Texas A&M Health Science Center Baylor College of Dentistry’s online International Oral Lichen Planus Support Group, a web-based support group that brings together sufferers from throughout the world. Visit us soon!
Live Online Webcast Discussions
The site also features periodic live online presentations for lichen planus sufferers presented by faculty in HSC-BCD’s Stomatology Center and guest faculty from other dental schools around the world.
About the Dec 5th Webcast
- THE WEBCAST HAS BEEN POSTED AT THE TOP OF THE RECORDINGS PAGE
- THE WEBCAST QUESTIONS AND ANSWERS HAVE BEEN POSTED ON THE Q&A PAGE
What? - Around 24,000 men and women are diagnosed with oral cancer in the US each year; and as many as 5,300 will die. Oral cancer patients know it affects all of life: eating, drinking, talking—even overall health.
Who? - We at Baylor College of Dentistry are determined to fight this disease, and success requires research – along with people who volunteer to help.
Our research needs help immediately from people diagnosed with 1) oral cancer who have not yet begun treatment, 2) gum disease (periodontitis) or 3) oral lichen planus.
“I had oral cancer. I will do anything I can to help stop this dreaded disease!” – Baylor research donor
Join the discussion announcement mailing list
By joining our announcement mailing list, you will receive periodic announcements concerning the online discussions, and other information about the group.
Philosophy of The Support Group
The Oral Lichen Planus web site began in 1997 with the formation of the site and an email address for Dr. Burkhart to correspond with patients and practitioners. Since that time, we have added other features to enhance the site and we have increased our discussion sessions.
The philosophy of the site is to provide educational materials and individual support to patients with the disorder through a self-help concept. The individual patient is perceived as a member of the larger group that comprises the worldwide oral lichen planus patient population.
Purpose of the Web site
The educational material provided on the site is intended to assist the patient, family members and the practitioner in obtaining currect information regarding oral lichen planus. The information provided on the IOLPSG is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her physician.
All material received on our web site is treated as confidential and is not shared with any third parties. Only those directly involved with the web site have access to the e-mails, addresses or any other personal information. Both Dr. Terry Rees and/or Dr. Nancy Burkhart review and answer e-mails directly.
In the event that an e-mail is shared with another party, such as a healthcare provider, permission is first obtained from the person who contacts us. Information in the form of e-mails and surveys are moved into separate files and treated confidentially.
The IOLPSG is a non-profit organization and we do not operate through advertising or promotion of any specific products. Any products that are recommended are based solely on proven data of the success of the product and its use in the treatment of oral lichen planus. Our recommendations are subject to change based on new research and on new products that may become available or those that may assist more fully in treatment. We do not accept advertising or sponsorship of any dental products in exchange for advertising or promotion of a particular product.
GOALS FOR THE INTERNATIONAL ORAL LICHEN PLANUS SUPPORT GROUP
- To serve as a resource for patients, family members and practitioners
- To address concerns and to offer emotional support individually as well as through a group effort
- To serve as a central resource by providing accurate, current information
- To promote significant research efforts
- To serve as a referral system world-wide for other university based dental schools and facilities that are knowledgeable in the treatment of oral lichen planus
OLP Information & Live Discussions
We will be having periodic discussion room dates which will be listed on the page as they are scheduled. Additionally we will publish new information on oral lichen planus as well as other health-related materials. Please check this page periodically for new dates and new educational materials.
We hope that you find this resource beneficial. Please continue to make suggestions to us and let us know how we can meet your needs.
Please feel free to participate with us in this online process, as well as with others interested in this important topic, by emailing questions or comments to Dr. Nancy W. Burkhart.
Dr Nancy W. Burkhart is an adjunct associate professor and educational consultant in the Department of Periodontics Baylor College of Dentistry. BCD is a component of The Texas A&M University System Health Science Center.